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Adventures with Ellie -- T21

7 Ways to Celebrate World Down Syndrome Day

March 9, 2024

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World Down Syndrome Day is celebrated on March 21st (3/21) of each year to represent the three copies of the 21st chromosome found in individuals with Down syndrome. Here are seven easy ways to celebrate those with Down syndrome in your community!

World Down Syndrome Day
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Filed in: Down Syndrome • by mbrook625 •

Our Toddler With Down Syndrome — Ellie’s First Three Years

January 15, 2024

Consciously or not, I always end up reflecting on my my yearly accomplishments and upcoming goals at the beginning of January. That combined with the fact that Ellie just turned three has me thinking about just how far we’ve come since receiving her Down syndrome diagnosis nearly four years ago. This seems like the perfect time to reflect on our journey with our toddler with Down syndrome–how we’ve grown throughout her life and what we are looking forward to with her in the coming year.

Toddler With Down Syndrome
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Top 10 Baby Essentials for Your Newborn With Down Syndrome

September 14, 2023

Disclosure: As an Amazon Associate, I earn from qualifying purchases. Please see my full disclosure for further information.

Once you get over the initial Down syndrome diagnosis, you realize that you are going to be bringing this baby home, and he/she is going to need lots of STUFF. The good news is, for the most part, babies with Down syndrome need the same baby supplies as any typical baby. The super cute baby clothes, blankets, and room decor won’t change (unless you want to throw some Lucky Few arrows into your design). However, there are a few items that are more important for babies with Down syndrome due to anatomy and development. Here is a list of the baby essentials you will need for your newborn with Down syndrome.

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Filed in: Down Syndrome • by mbrook625 •

15 Inspiring Down Syndrome Instagram Accounts You’ll Want to Follow

July 3, 2023

After researching everything I could about Down syndrome when we got Ellie’s prenatal diagnosis, my next step was trying to figure out what our family would look like with a child who had Down syndrome. While Google made me apprehensive, Instagram was my source of solace. I found so many families with children who had Down syndrome, and their lives seemed to be perfectly normal. Beyond that, their lives seemed incredibly joyful!

If you are wondering what life with a child who has Down syndrome looks like, check out these fifteen inspiring Down syndrome Instagram accounts.

Down Syndrome Instagram
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Filed in: Down Syndrome • by mbrook625 •

9 Amazing Down Syndrome Organizations to Help With Your Baby’s Down Syndrome Diagnosis

May 29, 2023

Disclosure: As an Amazon Associate, I earn from qualifying purchases. Please see my full disclosure for further information.

If your baby just received a prenatal or postnatal Down syndrome diagnosis, you are probably frantically Googling information about Down syndrome. Unfortunately, much of what you are Googling is probably negative. If you are looking for something a little more positive, here are nine amazing Down syndrome organizations that are both informative and encouraging.

And for those of you here as advocates for people with Down syndrome, these organizations can always use your help through fundraising, donating, or volunteering.

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Filed in: Down Syndrome • by mbrook625 •

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Hi, I'm Brooke--mom to three amazing kids (one who happens to have an extra chromosome), wife, middle school ELA teacher, and advocate for people with Down syndrome. This page is a glimpse into how our daughter Ellie has positively impacted our lives since surprising us with Trisomy 21 in 2020. I'll be writing a lot about what we have learned from having a child with Down syndrome sprinkled with the daily adventures that come from life with a toddler. I'm glad you found us!

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@adventureswithellie_t21

Spring Break 2024 -- Fun day at the zoo! We are so Spring Break 2024 -- Fun day at the zoo! We are so lucky to live close enough for a day trip to one of the largest zoos in the world!
The Lucky Few Tattoo ✅️ Why do so many parent The Lucky Few Tattoo ✅️

Why do so many parents of children with Down syndrome have some version of this tattooed on their body? The three arrows represent three copies of the 21st chromosome, and the arrows themselves represent rising up and moving forward. It is a symbol of connection in the Down syndrome community and a great way to spread awareness. 

And if you didn't already know, we're called The Lucky Few because we are the absolute luckiest in getting to have someone with Down syndrome in our immediate family! 💙💛

#theluckyfewtattoo #theluckyfew #downsyndromeawareness
Tomorrow is World Down Syndrome Day! When Ellie Tomorrow is World Down Syndrome Day! 

When Ellie was born, I had no idea that people with Down syndrome could go to college or even graduate from high school. 

Inclusive education has come a long way; more and more students with Down syndrome are finding success in mainstream classrooms, and many colleges have started offering programs for students of varying disabilities.

Ruby's Rainbow is an organization that offers scholarships for people with Down syndrome to pursue their dreams through higher education programs. We would love for you to join us in supporting them for this World Down Syndrome Day!

To participate, use this website to donate $21 and tell three friends to do the same. ❤️

https://321pledge.org/share/brooke-connor

(Link in bio)

#rubysrainbow #321pledge #downsyndrome #theluckyfew #nothingdownaboutit #downrightperfect
This is Ruby, the face behind Ruby's Rainbow, an o This is Ruby, the face behind Ruby's Rainbow, an organization that provides scholarships for people with Down syndrome to attend college. When Ruby was born, her parents knew that they wanted to give back to the Down syndrome community but didn't know exactly how. They saw so many programs for young people with Down syndrome but very few for those who had graduated from high school--hence Ruby's Rainbow was born. 

Since 2012, Ruby's Rainbow has granted 741 scholarships totaling $2.67 million dollars! The goal this year is to raise $700,000 between today and March 21st (World Down Syndrome Day) to help people with Down syndrome reach their dreams of higher education and independence.

Please join me in taking the pledge to support this wonderful cause! Here's how it works:

1. Donate $21.
2. Pledge to be kind to people of all abilities.
3. Ask three friends to do the same.

Use my link in bio to join us!
(https://321pledge.org/share/brooke-connor)

#321pledge #rubysrainbow #WDSD
Disney photo dump (minus characters) Disney photo dump (minus characters)
Disney 2024 -- Meeting all the characters! #disne Disney 2024 -- Meeting all the characters!

#disneycuties #disneycharacters #downrightperfect #downsyndrome #toddlerwithdownsyndrome #theluckyfew #extrachromosomeextracute #trisomy21

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